03:45AM, Wednesday 17 October 2012
A little girl and her parents have been given a date for a life-changing operation to save her from a wheelchair.
Genevieve Gregory-Osborne - known to everyone as Vivi - has the condition spastic quadriplegic cerebral palsy. Her parents Helen and Terry, of York Avenue, Windsor, have been fundraising to raise £50,000 to pay for the pioneering operation and follow-up treatment.
The operation will involve cutting nerves affected by the condition, enabling six-year-old Vivi to learn how to walk, balance and move using unaffected ones.
It has only been performed on 27 children and is not available on the NHS.
This week Helen received a letter, saying that the surgeon at the Frenchay Hospital in Bristol could now operate at the end of this month.
Helen said: "Thank heavens we had already raised enough money to pay for it. We are outside the NHS forever now so we are on our own."
Vivi's seven-and-a-half hour operation will be followed by an intensive three weeks of physiotherapy and another 20 years of follow-up treatment.
Her mum said: "She will have to stay on her back for three days. Then she will be able to sit up, then sit on the edge of the bed, then walk."
The fundraising will have to continue as the final cost of Vivi's treatment and therapy over the next 20 years will come to £70,000.
Helen joked: "By the end of it Vivi will be old enough to fundraise herself."
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